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FROM UNCERTAINTY TO SMILES

FROM UNCERTAINTY TO SMILES

一个年轻的家庭克服了嘴唇和口感

马里兰州的Paola Pinto-Patarroyo和她的丈夫路易斯·佛朗哥(Luis Franco)医学博士在日历上盘旋了20周的超声检查数周。一天到来时,第一次父母与妇产科医生一起急切地研究了监视器。

当他们得知自己有一个男孩时,一阵兴奋的浪潮冲向了这对夫妇。但是,没有什么能为他们的妇产科医生告诉他们的接下来的事情:他们的儿子嘴唇和left裂。

“It was like falling through a hole that had no floor,” says Paola, who was training to become a rheumatologist at the time. “I just remember hugging Luis and questioning what we did wrong.”

遗传学家路易斯(Luis)安排了这对夫妇在怀孕前接受基因测试,但结果恢复正常。没有什么表明他们的怀孕除了普通之外。

唇裂和left裂是当婴儿在怀孕期间未正确形成的嘴唇或嘴巴时出现的先天缺陷。大约有1600名婴儿出生时嘴唇和口感,使其成为最常见的先天缺陷之一。尽管大多数新生儿的原因尚不清楚,但基因和环境因素的组合可能是造成的。

保罗和路易斯仍然感到震惊,开始为他们的儿子研究治疗选择,他们决定命名马可。beplay苹果手机能用吗他们的搜索将他们带到了与儿童纪念馆赫尔曼医院合作的Uthealth的McGovern医学院的德克萨斯州裂口沟渠团队。他们在那里遇到了医学博士John F. Teichgraeber,亲切地称为T. T.

“Dr. T stood by our side from that very first meeting,” says Paola. “His care and compassion gave us the confidence that Marco would be healthy and live a normal life.”

在接下来的几个月中,Paola和Luis为朋友和家人的支持而感到安慰。到马可(Marco)于2011年7月出生时,他们很欣喜若狂。

“当我见到他的那一刻,一切都变得完美了,”保罗说。“一旦我能够抱住他,亲吻他,看看他有多美丽,我终于能够爬出那个不确定性的洞。”

Marco在他出生后五天就开始了鼻腔肺泡成型疗法,以非外观重塑牙龈,嘴唇和鼻孔。每天24小时,他穿着喉舌和鼻支架,以减少裂缝的大小,并为成功的手术做准备。Teichgraeber在13周内成功修复了Marco的嘴唇和鼻子。

路易斯(Luis)和鲍拉(Paola)通过筹集资金来庆祝马可(Marco)的第一个生日,以感谢Teichgraeber和他的团队在Marco生命的第一年中带走了他们。与朋友和家人分享他们的故事,为团队筹集了11,000美元。

“We feel privileged to have such a wonderful community of support and access to incredible physicians such as Dr. T,” says Paola. “We want to help other families who are going through the same thing.”

Marco在未来两年内需要进行Teichgraeber的其他手术,以修复他的口感,并插入耳管以防止慢性液体积聚。Uthealth牙科学院的牙科专业人员也有助于维持他的口腔健康,言语治疗师帮助他学会了讲话。

In 2014, just before Marco’s third birthday, Luis and Paola took jobs at the National Institutes of Health in Washington, D.C. By then, Teichgraeber was an integral part of their family. They continued traveling to the Texas Cleft-Craniofacial Team at UT Physicians Pediatric Surgery Clinic each year until Marco’s final facial reconstruction procedure in July 2019. “We changed our cities, jobs, lives—everything except Dr. T,” says Paola.

在他的父母的榜样之后,马可通过举办筹款活动来支持德克萨斯州裂口冰川面料团队,庆祝了他的八岁生日。

“I already have everything I could ever want,” Marco told his mother. “I just want to do what you did for my first birthday to thank Dr. T.”

在每个政党invit马可包括我个人而言ation asking for donations to the clinic instead of gifts. After his birthday, he proudly presented Teichgraeber with a check for $900.

“Most people don’t realize anything was ever wrong with Marco’s face,” says Paola. “He has never been self-conscious about who he is and how his face looks, and we have Dr. T, the Texas Cleft-Craniofacial Team, and UT Physicians Surgery Clinic to thank for that.”
尊重非凡的遗产

For more than two decades, Teichgraeber devoted his career to serving children born with cleft lip/palate. As the former Director of the Texas Cleft-Craniofacial Team and a frequent volunteer on mission trips, he used his surgical expertise to provide hope and healing for families around the world.

预计Teichgraeber于2019年8月从该实践中退休,马里兰州的Matthew R. Greives领导了一场秘密众筹活动,以纪念他的同事和导师的无私服务。该活动的目标是筹集50,000美元,以建立约翰·蒂希格伯(John F. Teichgraeber)博士在儿科塑料和颅面外科手术部门的教育捐赠。但是,患者,同事,朋友和家人的支持筹集了超过100,000美元。

Greives说:“我很荣幸地认识T博士作为同事,导师,教育家,外科医生和朋友。”“当我介入他担任小儿塑料和颅面外科部门的主任时,我很荣幸通过向患者及其家人提供同样的非凡护理来继续他的遗产。”

在Teichgraeber的退休聚会上,Greives宣布建立捐赠基金使他感到惊讶。捐赠基金将支持研究,杰出的来访讲师以及教职员工和学生参beplay苹果手机能用吗加会议,从而创建永久的资金来源,以教育未来的卫生保健领导者,他们跟随Teichgraeber的脚步,以改善我们社区的健康。

“I am surprised and deeply humbled by everyone who helped establish this endowment,” says Teichgraeber. “It has been my greatest pleasure to serve children born with orofacial clefts and craniofacial deformities and to train the future medical professionals and leaders who will continue to brighten the lives of these children.”

目录 ”

FROM UNCERTAINTY TO SMILES
FROM UNCERTAINTY TO SMILES
保罗和她的丈夫路易斯(Luis)自从马可(Marco)出生之前就考虑过医学博士John F. Teichgraeber。从左到右的照片是马可的妹妹瓦莱里亚(Valeria);保罗Teichgraeber;马可;和路易斯。
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