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CHPPR合作伙伴癫痫基金会得克萨斯州提供癫痫的支持,服务和教育

CHPPR合作伙伴癫痫基金会得克萨斯州提供癫痫的支持,服务和教育

得克萨斯州癫痫基金会是对癫痫病人的治疗和支持的领导者,提供各种服务,包括医疗诊所,支持小组,夏令营和全州的社区教育。They also partner with other organizations to provide additional resources to people with epilepsy, such as epilepsy self-management programs. The Center for Health Promotion and Prevention Research (CHPPR) and Epilepsy Foundation Texas have partnered to implement CHPPR’s心态program,用于诊所的癫痫管理的决策支持工具。

得克萨斯州癫痫基金会计划总监Suzanne Thomas说:“我们的使命是通过提供有价值的信息,计划和服务来支持癫痫患者以及家人。”“我们想说我们提供营地,诊所和教育。”

德克萨斯州癫痫基金会为全州多个城市的未投保患者开展诊所。这些诊所提供专门的癫痫治疗,并协助获得其他服务的药物和信息和推荐。该基金会还组织全州的支持和活动小组,使癫痫患者有机会相遇和联系。

至于他们的营地,得克萨斯州癫痫基金会是该国最大的夏令营之一,为3,000多名8-19岁的儿童和年轻人提供癫痫。他们还在秋冬提供以家庭为中心的周末营地。这些营地免费提供给参与者。

癫痫基金会得克萨斯州also works to educate communities and raise awareness about epilepsy, seizures, and appropriate first aid through social media awareness raising, community education, and a free certification course for seizure first aid. The Foundation also provides trainings for teachers and school nurses on how to care for children with epilepsy, going beyond administering medication to caring for the whole person.

“Education might not seem like the most exciting thing we do, but educating people about things like the different types of seizures and first aid is so important,” said Thomas. “You never know when you’re going to be the person who has to provide first aid for a seizure.”

得克萨斯州癫痫基金会经常将癫痫的人与支持小组和自我管理计划等资源联系起来,例如那些是国家管理癫痫井网络的一部分。该组织通过与CHPPR的合作伙伴关系来扩展这些能力,从而在其泰勒诊所实施了社区卫生工作者使用CHPPR的管理信息和决策支持癫痫工具(Mindset)。Mindset是一个可在线访问的程序,可以为癫痫患者生成个性化的行动计划和其他程序或服务推荐。社区卫生工作者将帮助患者浏览该工具,然后确保他们与癫痫的自我管理计划和其他服务联系起来。

“The Tyler clinic is in an area where people couldn’t get a lot of this kind of direct support before, but now patients will get the chance to access the MINDSET program and get connected with a CHW to provide additional resources or wrap-around services,” said Thomas. “We’re excited to get started and we’re already looking to expand to other interested clinics.”

You can learn more about Epilepsy Foundation Texas on他们的网站

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