心态。
项目概述
The Management Information & Decision Support Epilepsy Tool Plus (MINDSET) is a web-based bilingual program designed to improve patient-provider communication to enhance self-management of patients with epilepsy (PWE) through tailored behavioral goal selection and action plan development.
.jpg?language_id=1)
项目详细信息
管理信息和决策支持癫痫工具Plus（Mindset）是一个基于网络和西班牙语的基于Web的程序，可在任何具有Internet连接的计算机，平板电脑或智能手机上访问。该计划的主要目标是改善患者提供者的沟通，以通过量身定制的行为目标选择和行动计划制定来增强癫痫患者（PWE）的自我管理。心态设计用于在常规的患者诊所就诊期间使用，并包括三个部分：我的癫痫病，目标和计划，这些部分按该顺序完成。
“我的癫痫”部分由一项详细的调查组成，其中提示PWE回答涵盖癫痫自我管理三个领域（ESM）的一组问题：癫痫发作管理（患者最近的癫痫发作历史（包括频率和类型））and seizure self-management behaviors), medication management (current anti-seizure medication prescriptions, medication adherence, adherence barriers, side effects, and medication self-management behaviors), and lifestyle management (including mood, social life (such as sexual relationships, child care, employment, and driving), physical activity, safety, record keeping, social support, cognitive function, general quality of life, and social determinants (such as food insecurity, lack of housing, lack of companionship, and financial issues)).
一旦完成“我的癫痫”调查，PWE就会移至“我的目标”部分，在该部分中，根据“我的癫痫”调查中提供的答案，他们在每个域中显示了他们在每个域中的风险行为。然后，要求PWE选择最多三个目标（一个来自每个领域的目标），以便下一次诊所访问。对于每个选定的目标和行为，提示PWE从他们将用来满足目标的策略列表中进行选择，以表明他们对实现目标的信心有多自信，并列出了任何可感知的成功障碍。如果域中没有标记的行为，则PWE不需要为该域选择一个目标。然后询问PWE，以了解CDC的管理癫痫井（MEW）网络开发的三个专业癫痫自我管理计划的过去经验：步伐，Uplift和Hobscotch。节奏的目的是增加具有活跃癫痫病疾病的成年人的医疗，社会心理和社区调整。Uplift旨在通过正念和认知行为技巧来解决PWE的抑郁和改善心理健康。HobScotch是一个行为计划，旨在解决PWE中的记忆和注意力问题。
After completion of both “My Epilepsy” and “My Goals”, MINDSET compiles an Action Plan (AP), in English or Spanish, summarizing the patient’s seizure history, symptoms, medications, missed doses, and side effects as well as summary statements regarding the patient’s epilepsy self-management (ESM) behaviors and mood. The AP also provides a detailed summary page for each of the patient’s three chosen behavioral goals for seizure, medication, and lifestyle management, as well as their chosen strategies to achieve these goals and their confidence in their ability to use these strategies. Any currently challenging social situations flagged by the program are then listed with a prompt to discuss these with the health care provider. In addition, if the PWE’s answers from “My Epilepsy” indicate a need for more intensive intervention, a referral will also be added for the MEW programs that the PWE is eligible for. After reviewing the “My Plan” section, the patient is given the option to download or print the current Action Plan so that it can be used to guide decision making during their discussion with the provider. The patient and health care provider discuss the AP prior to the patient leaving the clinic and the clinic staff then contact the patient 2 weeks after the visit in a scheduled booster call to check in on how the plan is going.
心态is also currently being tested as a Community Health Worker (CHW) mediated intervention for PWE. The goal is to integrate MINDSET into community-based clinics as an intervention for assisting CHWs in navigating, assessing, reinforcing, educating, and linking PWEs to community programs and services. Certified Community Health Workers can use assessment and feedback to assist people with epilepsy (PWE) in meeting their epilepsy self-management (ESM) goals to help them manage their seizures, medications, and lifestyle factors while also linking PWE to evidence-based educational interventions and social service programs.
心态does not collect any personal health information (PHI) from PWEs or providers. Users log-in to the program using a preprogrammed set of credentials generated by staff at UTHealth. To request access to MINDSET please contact the Primary Investigator, Dr. Ross Shegog, at ross.shegog@uth.tmc.edu. For more information about MINDSET, please contact the MINDSETPlus Project Director, Katarzyna Czerniak, atkatarzyna.w.czerniak@uth.tmc.edu
心态是Managing Epilepsy Well (MEW) Network。
https://managingepilepsywell.org/mindset
人们
RossShegog，博士- 德克萨斯州主要研究员
David Labiner博士 -主要调查员，，，，亚利桑那
Refugio Sepulveda, PhD -主要调查员，，，，亚利桑那
罗伯特·阿迪（Robert Addy），博士- 数据分析师
罗莎莉亚·格雷罗（Rosalia Guerrero） - 共同投资者
Katarzyna Czerniak，MLA，MPH-项目总监
Alejandra Garcia，DDS-研究生助理
Kimberly Martin - Project Coordinator (Epilepsy Foundation Central and South Texas)
Denya Ardis-项目协调员（德克萨斯州的癫痫基金会）